We are sitting in the waiting room getting updates on our son Benny's heart surgery. So far it's already been a long day. I woke up with the alarm at 4:30 this morning so I could give Benny his last nurse of the day. He was only allowed clear fluids after 5am. At 6:20 I woke back up to my mom knocking on the door for us to get going. Benny woke up and looked around, surprised that the lights were on so early. We sang our morning songs to him and he gave us his usual big smiles. We packed up quickly and drove towards the hospital. The sunrise was beautiful, and Benny was enjoying sitting with his Grandma in the back seat. We checked him in and met with the anesthesiologist, surgeon and nurses. Everyone was very friendly and it almost felt like a big party until it was time to give Benny up. This was one of the hardest moments of my life, watching the nurses walk away with my baby. Every so often we would get news, but the large part of the day was spent waiting. Finally the cardiologist came in and told us that the surgery was a success! They need to stitch him up, so we are still waiting to see him now, but Benny's heart appears to be working exactly as it should now! Thank you to everyone who has prayed, meditated and sent positive thoughts to us over the past few days. Benny will continue to need support as he heals, but the scariest part is over now. We are so fortunate to have had the very best doctors we could wish for taking care of our little boy. I'm just so happy that after so long spent dreading this moment we are finally almost on the other side. :)
3 Comments
ELAINER & GARY MATHIAS
12/9/2014 05:58:44 am
FANTASTIC NEWS!
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Taymar Pixleysmith
12/12/2014 12:53:30 am
We are so, so happy with how well the surgery and recovery have gone so far. Thank you for keeping us in your prayers.
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Ernash
12/15/2014 10:06:51 am
You & Max are amazing parents, Caspian an amazing brother and Benny - strength, power, love, beauty & soso adorable!!
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April 2022
AuthorSince becoming a mom to a little boy with Trisomy 21 I have written a lot about Down syndrome and disabilities. I am a storyteller, wife and mom to a teen and a toddler. Life is busy! Categories
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